Table of Contents

Handbook of Genomics, Health & Society

Table of Contents

List of Illustrations and Figures
Notes on the Contributors
Acknowledgements

1          Introduction: Genomics, Health and Society
            Sahra Gibbon, Barbara Prainsack, Stephen Hilgartner and Janelle Lamoreaux

Section One
Genomic/DNA-based Technologies in the Clinic and Beyond

2          Introduction
            Sabina Leonelli

3          Biomedicalisation in the Postgenomic Age
            Catherine Bliss

4          Genomics and Big Data in Biomedicine
            Sabina Leonelli and Niccolo Tempini

5          Mainstreaming Genomics and Personal Genetic Testing
            Susan Kelly, Sally Wyatt and Anna Harris

6          Bringing Genetics into the Clinic: The Evolution of Genetic Testing and Counselling
            Ilana Lowy

7          From Quality Control to Informed Choice: Understanding “Good Births” and                         Prenatal Genetic Testing in Contemporary Urban China
            Jianfeng Zhu, Shiyi Xiong and Dong Dong

Section Two
Genomic Technologies in the Bioeconomy

8          Introduction
            Claire Marris

9          Limits to Biocapital
            Margaret Chiappetta and Kean Birch

10       Gendered Bioeconomies
            Janelle Lamoreaux

11       Genomic Hope: Promise in the Bioeconomy
           Paul Martin

12       Neoliberalism on Drugs: Genomics and the Political Economy of Medicine
           Edward Nik-Khah

13       The Value of the Imagined Biological in Policy and Society: Somaticizing and                        Economising British Subject(ivitie)s
           Martyn Pickersgill

14       Responsible Research and Innovation (RRI)
           Ulrike Felt

Section Three
Governance of Medical Genomics

15       Introduction
           Stephen Hilgartner

16       The Human Genome Project and the Legacy of its Ethics Programs
           Stephen Hilgartner

17       Patenting
           Shobita Parthasarathy

18       Genomic Platforms and Clinical Research
           Alberto Cambrosio, Etienne Vignola-Gagné, Nicole Nelson, Peter Keating, Pascale                  Bourret

19       Diagnostics
           Stuart Hogarth

20       Collection and Protection of Personal Health Data
           Edward Dove

21       In CRISPR’s World: Genome Editing and the Politics of Global Science
           Ben Hurlbut

Section Four
Diversity and Justice

22       Introduction
           Sahra Gibbon and Barbara Prainsack

23       Disability and the Challenge of Genomics
            Jackie Lee Scully

24       Eugenics and Enhancement in Contemporary Genomics
           Silvia Camporesi and Giulia Cavaliere

25       Genomics and Insurance
            Ine van Hoyweghen

26       Power Asymmetries, Participation, and the Idea of Personalised Medicine
           Barbara Prainsack

27       Excavating Difference: Race in Genomic Medicine
            Sandra Lee

28       Genomics in Emerging and Developing Economies
           Duana Fulwiley and Sahra Gibbon

Section Five
Crossing Boundaries

29       Introduction
            Janelle Lamoreaux

30       Epigenetics
           Margaret Lock

31       Environmental Epigenetics and Suicide Risk at a Molecular Scale
           Stephanie Lloyd and Eugene Raikhel

32       Stem Cells, Global Cells, Local Cultures
            Jennifer Liu

33       Co-producing Animal Models and Genetic Science
           Carrie Friese

34       Making Microbiomes
            Amber Benezra

35       Behavior Genetics: Boundary Crossings and Epistemic Cultures
           Nicole Nelson and Aaron Panofsky

36       Synthetic Biology
           Deborah Scott, Dominic Berry, and Jane Calvert

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